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Outputs (70)

Understanding Repetitive Behaviours: A clinical and cost-effectiveness, multi-site randomised controlled trial of a group for parents and carers of young autistic children (2025)
Journal Article
Grahame, V., Kernohan, A., Kharati, E., Mathias, A., Butcher, C., Dixon, L., Fletcher-Watson, S., Garland, D., Glod, M., Goodwin, J., Heron, S., Honey, E., Le Couteur, A., Mackie, L., Maxwell, J., Montgomery, L., Ogundimu, E., Probert, H., Riby, D., Rob, P., …Rodgers, J. (online). Understanding Repetitive Behaviours: A clinical and cost-effectiveness, multi-site randomised controlled trial of a group for parents and carers of young autistic children. Autism, https://doi.org/10.1177/13623613251333175

Restricted and repetitive behaviours vary greatly between autistic people. Some are a source of pleasure or create opportunities for learning; others may be detrimental in day-to-day life or cause harm. We have developed, in close collaboration with... Read More about Understanding Repetitive Behaviours: A clinical and cost-effectiveness, multi-site randomised controlled trial of a group for parents and carers of young autistic children.

Using Q Methodology, a group of Neurodivergent Neurodiversity Scholars ask, What is the Neurodiversity Movement, and What Should It Do? (2025)
Journal Article
Stenner, P., Pearson, A., Kapp, S., Watson, C., Pressler, R., Williams, G., Bertilsdotter-Rosqvist, H., Hultman, L., Semmens-Wheeler, R., & Botha, M. (2025). Using Q Methodology, a group of Neurodivergent Neurodiversity Scholars ask, What is the Neurodiversity Movement, and What Should It Do?. Neurodiversity, 3, 1-17. https://doi.org/10.1177/27546330251329625

This paper describes the eight phases of an innovative procedure for collective and reflexive research about neurodiversity. Structured by Q methodology, this procedure allowed a small group (n=10) of neurodivergent researchers to identify and discus... Read More about Using Q Methodology, a group of Neurodivergent Neurodiversity Scholars ask, What is the Neurodiversity Movement, and What Should It Do?.

Using Q Methodology, a Group of Neurodivergent Neurodiversity Researchers Ask: What is the Neurodiversity Movement and what should it do? (2025)
Journal Article
Stenner, P., Pearson, A., Kapp, S., Watson, C., Pressler, R., Williams, G., Bertilsdotter-Rosqvist, H., Hultman, L., Semmens-Wheeler, R., & Botha, M. (2025). Using Q Methodology, a Group of Neurodivergent Neurodiversity Researchers Ask: What is the Neurodiversity Movement and what should it do?. Neurodiversity, 3, https://doi.org/10.1177/27546330251329625

This paper describes the eight phases of an innovative procedure for collective and reflexive research about neurodiversity. Structured by Q methodology, this procedure allowed a small group (n = 10) of neurodivergent researchers to identify and disc... Read More about Using Q Methodology, a Group of Neurodivergent Neurodiversity Researchers Ask: What is the Neurodiversity Movement and what should it do?.

Neurodivergent Pupils’ Experiences of School Distress and Attendance Difficulties (2025)
Journal Article
Fielding, C., Streeter, A., Riby, D. M., & Hanley, M. (2025). Neurodivergent Pupils’ Experiences of School Distress and Attendance Difficulties. Neurodiversity, 3, https://doi.org/10.1177/27546330251327056

Evidence suggests that neurodivergent pupils are disproportionately impacted by school distress and attendance difficulties in mainstream schools in the United Kingdom. Research on school distress and attendance has predominantly consulted parents an... Read More about Neurodivergent Pupils’ Experiences of School Distress and Attendance Difficulties.

“It has shown me how much I am capable of”: An Exploration of Autistic Burnout Experiences in Motherhood (2024)
Journal Article
Pearson, A., Ferguson, A., & Martin, D. (online). “It has shown me how much I am capable of”: An Exploration of Autistic Burnout Experiences in Motherhood. Autism in Adulthood, https://doi.org/10.1089/aut.2024.0282

Background: Research has highlighted a relationship between autistic motherhood and autistic burnout, though autistic mothers’ experiences of autistic burnout have not been explored in depth.

Method: To address this research gap, we used a partic... Read More about “It has shown me how much I am capable of”: An Exploration of Autistic Burnout Experiences in Motherhood.

“It's a long process, and it's a long journey”: Autistic adult’s experiences of support and recovery after experiencing intimate violence and abuse (2024)
Journal Article
Pearson, A., Botha, M., Rose, K., Mitchell, A., Joseph, W., Douglas, S., & Sedgewick, F. (online). “It's a long process, and it's a long journey”: Autistic adult’s experiences of support and recovery after experiencing intimate violence and abuse. Autism in Adulthood, https://doi.org/10.1089/aut.2024.0146

Background: Many services designed to support victim/survivors of intimate partner violence (IPV) do not have a specific focus on, or understanding of neurodivergence, which may impact autistic access to meaningful support. The aim of this project wa... Read More about “It's a long process, and it's a long journey”: Autistic adult’s experiences of support and recovery after experiencing intimate violence and abuse.

“It's not a physical prison but you can't get out”. How autistic adults make sense of the experience of intimate violence and abuse (2024)
Journal Article
Pearson, A., Rose, K., Mitchell, A., Joseph, W., Douglas, S., Sedgewick, F., & Botha, M. (online). “It's not a physical prison but you can't get out”. How autistic adults make sense of the experience of intimate violence and abuse. Autism in Adulthood, https://doi.org/10.1089/aut.2024.0145

Background: Autistic people are more likely to experience intimate partner violence (IPV) than non-autistic peers, but our knowledge about how they recognise abuse and make sense of what has happened to them is sparse. The aim of this study was to ex... Read More about “It's not a physical prison but you can't get out”. How autistic adults make sense of the experience of intimate violence and abuse.

The experiences of children with Williams syndrome and their nondisabled siblings of their relationship (2024)
Journal Article
Cebula, K., Gillooly, A., Coulthard, L. K. B., Riby, D. M., & Hastings, R. P. (2025). The experiences of children with Williams syndrome and their nondisabled siblings of their relationship. Family Relations: Interdisciplinary Journal of Applied Family Science, 74(1), 500-518. https://doi.org/10.1111/fare.13102

Objective: This study explored sibling relationships from the perspective of children with Williams syndrome (WS) and their nondisabled (ND) siblings. Background: WS, a genetic condition with a profile that can include intellectual disabilities, hype... Read More about The experiences of children with Williams syndrome and their nondisabled siblings of their relationship.

Negative and Positive Experiences During the COVID ‐19 Pandemic in Canadians With Developmental Disabilities: A One‐Year Ontario‐Based Survey (2024)
Journal Article
Kassee, C., Jachyra, P., Mahalingam, V., Tint, A., Lin, H., Ameis, S., Di Martino, A., Lunsky, Y., & Lai, M. (2024). Negative and Positive Experiences During the COVID ‐19 Pandemic in Canadians With Developmental Disabilities: A One‐Year Ontario‐Based Survey. Journal of Applied Research in Intellectual Disabilities, 37(6), Article e13300. https://doi.org/10.1111/jar.13300

Purpose: Understanding the experiences of people with developmental disabilities during the initial period of COVID‐19 pandemic. Methods: Individuals with developmental disabilities and their caregivers completed baseline and up to five follow‐up onl... Read More about Negative and Positive Experiences During the COVID ‐19 Pandemic in Canadians With Developmental Disabilities: A One‐Year Ontario‐Based Survey.

Associations between autistic traits, depression, social anxiety and social rejection in autistic and non-autistic adults (2024)
Journal Article
Gurbuz, E., Riby, D. M., South, M., & Hanley, M. (2024). Associations between autistic traits, depression, social anxiety and social rejection in autistic and non-autistic adults. Scientific Reports, 14(1), Article 9065. https://doi.org/10.1038/s41598-024-59532-3

Autistic people frequently experience negative judgements from non-autistic people, often fuelled by misconceptions that autistic people lack empathy. Understanding responses to negative social judgement among autistic people is crucial because of th... Read More about Associations between autistic traits, depression, social anxiety and social rejection in autistic and non-autistic adults.

"Comforting, Reassuring, and…Hot": A Qualitative Exploration of Engaging in Bondage, Discipline, Domination, Submission, Sadism and (Sado)masochism and Kink from the Perspective of Autistic Adults. (2024)
Journal Article
Pearson, A., & Hodgetts, S. (2024). "Comforting, Reassuring, and…Hot": A Qualitative Exploration of Engaging in Bondage, Discipline, Domination, Submission, Sadism and (Sado)masochism and Kink from the Perspective of Autistic Adults. Autism in Adulthood, 6(1), 25-35. https://doi.org/10.1089/aut.2022.0103

There is a lack of research on autistic intimacy; however, a small body of research suggests that bondage, discipline, domination, submission, sadism and (sado)masochism (BDSM)/kink may be appealing to autistic people. We aimed at exploring how engag... Read More about "Comforting, Reassuring, and…Hot": A Qualitative Exploration of Engaging in Bondage, Discipline, Domination, Submission, Sadism and (Sado)masochism and Kink from the Perspective of Autistic Adults..

Anti-ableist language is fully compatible with high-quality autism research: Response to Singer et al. (2023) (2023)
Journal Article
Natri, H. M., Abubakare, O., Asasumasu, K., Basargekar, A., Beaud, F., Botha, M., Bottema-Beutel, K., Brea, M. R., Brown, L. X. Z., Burr, D. A., Cobbaert, L., Dabbs, C., Denome, D., Rosa, S. D. R., Doherty, M., Edwards, B., Edwards, C., Liszk, S. E., Elise, F., Fletcher-Watson, S., …Zisk, A. H. (2023). Anti-ableist language is fully compatible with high-quality autism research: Response to Singer et al. (2023). Autism Research, 16(4), 673-676. https://doi.org/10.1002/aur.2928

No transfer of arousal from other’s eyes in Williams syndrome (2023)
Journal Article
Kleberg, J. L., Hallman, A. E. Z., Galazka, M. A., Riby, D. M., Bölte, S., Willfors, C., Fawcett, C., & Nordgren, A. (2023). No transfer of arousal from other’s eyes in Williams syndrome. Scientific Reports, 13(1), Article 18397. https://doi.org/10.1038/s41598-023-45521-5

Typically developing humans automatically synchronize their arousal levels, resulting in pupillary contagion, or spontaneous adaptation of pupil size to that of others. This phenomenon emerges in infancy and is believed to facilitate social interacti... Read More about No transfer of arousal from other’s eyes in Williams syndrome.