The Digitalization of Social Care in England and Implications for Older, Unpaid Carers: Constructionist Thematic Analysis.

Rousaki, Anastasia; Zamani, Efpraxia D.; Sbaffi, Laura; Hamblin, Kate; Black, Rachael

Abstract

Globally, populations are aging, generating concerns about the sustainability of health and social care provision. In terms of the public provision of social care in particular, unpaid carers provide much of the support to people with disabilities and older people. In addition, there is an increased onus in many countries on digital transformation projects, in the hope that the digitalization of services can create efficiencies and savings in both costs and care labor. In England, the focus of this paper, the shift to digital services is also framed as a means to enhance choice and control for older unpaid carers, while being part of a broader offering that includes nondigital alternatives and support to mitigate digital exclusion. This study examines the impact of digitalization on older, unpaid carers-a group more likely to be both expected to engage digitally with services and at risk of digital exclusion-in England, focusing on their lived experiences in terms of caring and access to social care. We used a constructionist approach to thematic analysis, where data from 48 older unpaid carers collected through focus groups were analyzed using thematic analysis, resulting in 4 prevailing themes. Our findings indicated that while unpaid carers largely acknowledge the benefits of digitalization, they also highlight several points of failure, whereby engagement with digital spaces is experienced as coercive and exacerbates feelings of exclusion. These are further worsened by government failures to address issues of connectivity, imposing additional financial burdens and complicating tasks such as benefit applications. In this study, we have highlighted the need for greater involvement in shaping both policy and technological solutions, which in turn will be more inclusive and aligned to the aspirations and circumstances of older carers. [Abstract copyright: ©Anastasia Rousaki, Efpraxia D Zamani, Laura Sbaffi, Kate Hamblin, Rachael Black. Originally published in the Journal of Medical Internet Research (https://www.jmir.org), 24.10.2024.]

Citation

Rousaki, A., Zamani, E. D., Sbaffi, L., Hamblin, K., & Black, R. (2024). The Digitalization of Social Care in England and Implications for Older, Unpaid Carers: Constructionist Thematic Analysis. Journal of Medical Internet Research, 26, Article e60056. https://doi.org/10.2196/60056

• Journal Article Type: Article
• Acceptance Date: Sep 24, 2024
• Online Publication Date: Oct 24, 2024
• Publication Date: Oct 24, 2024
• Deposit Date: Sep 25, 2024
• Publicly Available Date: Nov 11, 2024
• Journal: Journal of Medical Internet Research
• Electronic ISSN: 1438-8871
• Publisher: JMIR Publications
• Peer Reviewed: Peer Reviewed
• Volume: 26
• Article Number: e60056
• DOI: https://doi.org/10.2196/60056
• Keywords: mobile phone, England, Aged, Caregivers, unpaid care, Male, Female, Focus Groups, Aged, 80 and over, digitalization, Humans, digital transformation, social care, Middle Aged
• Public URL: https://durham-repository.worktribe.com/output/2876603