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Outputs (9)

Williams syndrome: On the role of intellectual abilities in anxiety (2021)
Journal Article
Willfors, C., Riby, D., Van Der Poll, M., Ekholm, K., Avdic Björlin, H., Kleberg, J., & Nordgren, A. (2021). Williams syndrome: On the role of intellectual abilities in anxiety. Orphanet Journal of Rare Diseases, 16, Article 472. https://doi.org/10.1186/s13023-021-02098-4

Background: Individuals with Williams syndrome (WS) have an elevated risk for anxiety disorders throughout the life span, making it a research priority to identify the individual factors associated with anxiety. Most of the existing literature is bas... Read More about Williams syndrome: On the role of intellectual abilities in anxiety.

Trauma Informed Participatory Research: Reflections on Co-Producing a Research Proposal (2021)
Journal Article
Lonbay, S., Pearson, A., Hamilton, E., Higgins, P., Foulkes, E., & Glascott, M. (2021). Trauma Informed Participatory Research: Reflections on Co-Producing a Research Proposal. Gateways: International Journal of Community Research and Engagement, 14(1), 1-8. https://doi.org/10.5130/ijcre.v14i1.7728

This article discusses the development of a co-produced research proposal. The authors reflect on the process of this work and some of the challenges that were experienced by a team who had a mix of lived, clinical and academic experience of the rese... Read More about Trauma Informed Participatory Research: Reflections on Co-Producing a Research Proposal.

Understanding disability in healthcare: exploring the perceptions of parents of young people with autism spectrum disorder (2021)
Journal Article
Wright Stein, S., Alexander, R., Mann, J., Schneider, C., Zhang, S., Gibson, B. E., Gabison, S., Jachyra, P., & Mosleh, D. (2022). Understanding disability in healthcare: exploring the perceptions of parents of young people with autism spectrum disorder. Disability and Rehabilitation, 44(19), 5623-5630. https://doi.org/10.1080/09638288.2021.1948114

Purpose: How autism spectrum disorder (ASD) is understood (i.e., as a medical problem or natural human variation) has profound implications for how healthcare services are designed and delivered. As the recipients of these services, children and fami... Read More about Understanding disability in healthcare: exploring the perceptions of parents of young people with autism spectrum disorder.

‘Intolerance of Uncertainty’ mediates the relationship between social profile and anxiety in both Williams Syndrome and autism (2021)
Journal Article
South, M., Hanley, M., Normansell-Mossa, K., Russell, N., Cawthorne, T., & Riby, D. (2021). ‘Intolerance of Uncertainty’ mediates the relationship between social profile and anxiety in both Williams Syndrome and autism. Autism Research, 14(9), 1986-1995. https://doi.org/10.1002/aur.2554

Anxiety is the most significant mental health concern for both Williams syndrome (WS) and autism. Whilst WS and autism are characterised by some syndrome-specific social differences, less is known about cross-syndrome profiles of anxiety symptoms. Pr... Read More about ‘Intolerance of Uncertainty’ mediates the relationship between social profile and anxiety in both Williams Syndrome and autism.

An EEG investigation of alpha and beta activity during resting states in adults with Williams syndrome (2021)
Journal Article
Greer, J. M., Riby, D. M., McMullon, M. E., Hamilton, C., & Riby, L. M. (2021). An EEG investigation of alpha and beta activity during resting states in adults with Williams syndrome. BMC Psychology, 9(1), Article 72. https://doi.org/10.1186/s40359-021-00575-w

Background Williams syndrome (WS) is neurodevelopmental disorder characterised by executive deficits of attention and inhibitory processing. The current study examined the neural mechanisms during resting states in adults with WS in order to investig... Read More about An EEG investigation of alpha and beta activity during resting states in adults with Williams syndrome.

A clinical and cost effectiveness trial of a parent group intervention to manage challenging restricted and repetitive behaviours in young children with autism spectrum disorder: study protocol for a randomized controlled trial (2021)
Journal Article
Grahame, V., Dixon, L., Fletcher-Watson, S., Garland, D., Glod, M., Goodwin, J., Grayson, Z., Heron, S., Honey, E., Iversen, R., Kasim, A., Kernohan, A., Kharatikoopaei, E., Le Couteur, A., Mackie, L., Mathias, A., Probert, H., Riby, D., Rob, P., Rogan, L., …Rodgers, J. (2021). A clinical and cost effectiveness trial of a parent group intervention to manage challenging restricted and repetitive behaviours in young children with autism spectrum disorder: study protocol for a randomized controlled trial. Trials, 22, Article 240. https://doi.org/10.1186/s13063-021-05175-y

Background Restricted and repetitive behaviours vary greatly across the autism spectrum, and although not all are problematic some can cause distress and interfere with learning and social opportunities. We have, alongside parents, developed a parent... Read More about A clinical and cost effectiveness trial of a parent group intervention to manage challenging restricted and repetitive behaviours in young children with autism spectrum disorder: study protocol for a randomized controlled trial.

A Conceptual Analysis of Autistic Masking: Understanding the Narrative of Stigma and the Illusion of Choice (2021)
Journal Article
Pearson, A., & Rose, K. (2021). A Conceptual Analysis of Autistic Masking: Understanding the Narrative of Stigma and the Illusion of Choice. Autism in Adulthood, 3(1), 52-60. https://doi.org/10.1089/aut.2020.0043

Autistic masking is an emerging research area that focuses on understanding the conscious or unconscious suppression of natural autistic responses and adoption of alternatives across a range of domains. It is suggested that masking may relate to nega... Read More about A Conceptual Analysis of Autistic Masking: Understanding the Narrative of Stigma and the Illusion of Choice.