Skip to main content

Research Repository

Advanced Search

Assembling Dementia Care: Patient organisations and social research

Moreira, T.; O'Donovan, O.; Howlett, E.

Assembling Dementia Care: Patient organisations and social research Thumbnail


O. O'Donovan

E. Howlett


In this article, we take the concept of evidence-based activism as a point of departure to understand how Alzheimer’s disease (AD) associations have mobilised knowledge to re-articulate their role in the public sphere. We are specifically interested in political initiatives deployed by these organisations to shape the field of dementia care research, policy and practice in the last 5 years in the United Kingdom and Ireland. In both countries, the campaigns have emphasised the importance of developing and funding services and devices that mediate between the formal and the informal sectors of dementia care in order to support people living with dementia to stay at home for longer. Drawing on our analysis of documentary and interview data, our suggestion is that the transformation of dementia care into a ‘matter of concern’ is underpinned by AD organisations’ harnessing, fostering, sponsoring and circulating of social research conventions and methodologies such as the survey or the interview. Our main claim is that social scientific techniques and ways of reasoning have been key in the production and maintenance of boundary relations between informal and formal care in dementia. Our work can thus be seen as integrated in a renewed interest in understanding the epistemic cultures of social research and its relationship with political institutions of contemporary societies.


Moreira, T., O'Donovan, O., & Howlett, E. (2014). Assembling Dementia Care: Patient organisations and social research. BioSocieties, 9(2), 173-193.

Journal Article Type Article
Online Publication Date Apr 14, 2014
Publication Date Jun 1, 2014
Deposit Date Mar 25, 2014
Publicly Available Date Nov 19, 2014
Journal BioSocieties
Print ISSN 1745-8552
Electronic ISSN 1745-8560
Publisher Palgrave Macmillan
Peer Reviewed Peer Reviewed
Volume 9
Issue 2
Pages 173-193


Accepted Journal Article (604 Kb)

Copyright Statement
This is a post-peer-review pre-copyedit version of an article published in BioSocieties. The definitive publisher-authenticated version Moreira, T., O'Donovan, O. and Howlett, E. (2014) 'Assembling dementia care : patient organisations and social research.', BioSocieties., 9 (2). pp. 173-193 is available online at:

You might also like

Downloadable Citations